Menu

Tag: Ptosis

Sep 30
2019
Face of Yours 2019

Face of Yours 2019…

If someone had said to me that this year, I was going to be one of the winners for a plus size modelling campaign, I would’ve laughed hysterically, and told

Sep 14
2019
Featured Image - Church in Bristol

A Wheely Nice Time In Bristol…

Initially this blog post was going to be about the Bristol International Balloon Fiesta, but unfortunately it was cancelled due to the weather, so I didn’t get to see it.

Jul 29
2019
New Video

Spa Day and its aftermath.

This video documents my spa day at The Vale, Cardiff, with my mum. I discuss how I was feeling before the spa day began, how I felt during the spa

Jul 09
2019
New Video

Newcastle Appointment Part 1

Just to let you all know that I've received my latest appointment for Newcastle, what I will be expecting to happen during my visit, and why their investigations, tests, and

Jul 02
2019
New Video

A little trip out.

Just a quick hello to tell you about my little trip out today, with my very good friend. Cinema, lunch and a good ole' catch up. Nothing better. Mitochondrial Disease

Jun 24
2019
New Video

A little thought on negativity.

We all have a right to feel down, low, sad, frustrated, and angry. Sometimes there isn't one particular reason for feeling like this, and sometimes, there's no reason at all.

Jun 24
2019
New Video

Venturing out on my own. Slowly, but surely.

A quick trip to Tesco to try and keep up with my movement, and trying to gain some confidence whilst on my own. Nothing too tasking, just a short little

Jun 21
2019
New Video

Aftermath of Swimming

Just a quick update on how swimming went, what I was able to manage, and how I felt afterwards in myself, but also with regards to my muscles, fatigue etc.

Jun 12
2019

Let’s start at the beginning…

My name is Samantha, and I have Mitochondrial Disease. More specifically, Single Large Scale mtDNA Deletion with Chronic Progressive External Ophthalmoplegia (CPEO for short). These are progressive, with no treatment,