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Tag: Rare Disease

Aug 12
2019
New Blog Entry - A Sailors' Life for Me

A Sailors’ Life for Me…

I’m not a very good traveller at the best of times. Car – I have to sit in the passenger front seat, if I’m not driving. Dose myself up with

Jun 12
2019

Let’s start at the beginning…

My name is Samantha, and I have Mitochondrial Disease. More specifically, Single Large Scale mtDNA Deletion with Chronic Progressive External Ophthalmoplegia (CPEO for short). These are progressive, with no treatment,