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Jun 21
2019
New Video

Aftermath of Swimming

Just a quick update on how swimming went, what I was able to manage, and how I felt afterwards in myself, but also with regards to my muscles, fatigue etc.

Jun 18
2019
New Video

Accelerometer Part 2

An update on the Accelerometer, and recap of what it is supposed to capture, and do. Also touching on some of the symptoms of Mitochondrial Disease, and my aim to

Jun 12
2019
New Video

Accelerometer Part 1

A brief insight into what the Accelerometer is, and what it is for. I won’t know the results of what it has picked up, until my appointment in Newcastle with

Jun 12
2019

Let’s start at the beginning…

My name is Samantha, and I have Mitochondrial Disease. More specifically, Single Large Scale mtDNA Deletion with Chronic Progressive External Ophthalmoplegia (CPEO for short). These are progressive, with no treatment,