Mito and Me

Jun 24

2019

Venturing out on my own. Slowly, but surely.Venturing out on my own. Slowly, but surely.

A quick trip to Tesco to try and keep up with my movement, and trying to gain some confidence whilst on my own. Nothing too tasking, just a short little

Jun 21

2019

Aftermath of SwimmingAftermath of Swimming

Just a quick update on how swimming went, what I was able to manage, and how I felt afterwards in myself, but also with regards to my muscles, fatigue etc.

Jun 18

2019

Accelerometer Part 2Accelerometer Part 2

An update on the Accelerometer, and recap of what it is supposed to capture, and do. Also touching on some of the symptoms of Mitochondrial Disease, and my aim to

Jun 12

2019

Accelerometer Part 1Accelerometer Part 1

A brief insight into what the Accelerometer is, and what it is for. I won’t know the results of what it has picked up, until my appointment in Newcastle with

Jun 12

2019

Let’s start at the beginning…Let’s start at the beginning…

My name is Samantha, and I have Mitochondrial Disease. More specifically, Single Large Scale mtDNA Deletion with Chronic Progressive External Ophthalmoplegia (CPEO for short). These are progressive, with no treatment,