Menu

Month: June 2019

Jun 24
2019
New Video

A little thought on negativity.

We all have a right to feel down, low, sad, frustrated, and angry. Sometimes there isn't one particular reason for feeling like this, and sometimes, there's no reason at all.

Jun 24
2019
New Video

Venturing out on my own. Slowly, but surely.

A quick trip to Tesco to try and keep up with my movement, and trying to gain some confidence whilst on my own. Nothing too tasking, just a short little

Jun 21
2019
New Video

Aftermath of Swimming

Just a quick update on how swimming went, what I was able to manage, and how I felt afterwards in myself, but also with regards to my muscles, fatigue etc.

Jun 18
2019
New Video

Accelerometer Part 2

An update on the Accelerometer, and recap of what it is supposed to capture, and do. Also touching on some of the symptoms of Mitochondrial Disease, and my aim to

Jun 12
2019
New Video

Accelerometer Part 1

A brief insight into what the Accelerometer is, and what it is for. I won’t know the results of what it has picked up, until my appointment in Newcastle with

Jun 12
2019

Let’s start at the beginning…

My name is Samantha, and I have Mitochondrial Disease. More specifically, Single Large Scale mtDNA Deletion with Chronic Progressive External Ophthalmoplegia (CPEO for short). These are progressive, with no treatment,